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You are here: Home / Common Questions / What is Shadowing with Alzheimer’s Dementia?

What is Shadowing with Alzheimer’s Dementia?

06/307 Comments

What-is-shadowing

What is Shadowing…

Shadowing is a behavior often seen in the later stages of  Alzheimer’s or Dementia. To many care-givers, shadowing is the most intrusive of all the symptoms and behaviors of Alzheimer’s and Dementia.

The person with Alzheimer’s or dementia literally becomes your perpetual “shadow”. They follow their caregiver’s every movement for every waking moment. It does not sound as disturbing as it actually becomes for the caregiver.

If you turn around  quickly, you bump into them. If they aren’t a sound sleeper, they may be peering down at you when you awake. They tip-toe lightly and peer around corners, to always keep the caregiver in sight. They watch while you sleep, and follow close on your heels when you think they are no where around.

By the time “shadowing” begins, the person with dementia is far into the disease process and quite dependent on the Caregiver. Just as a small child tends to keep the parent in-sight at all times, the person with later stage dementia feels the same dependency on their caregiver.

The person with dementia recognizes their caregiver as someone who has their well-being at heart. The caregiver provides what they need on a daily basis; food, clothing, bathing, exercise, music perhaps. Their every necessity of life now comes from the Caregiver.

By this late stage of their disease, the person with dementia may feel totally dependent on the caregiver and they want the caregiver in-sight at all times.

  • The caregiver tends to their everyday existence, feeding them by hand if necessary
  • The caregiver showers them and prepares their clothing, making certain it’s appropriate for the season
  • The caregiver is the center of their world, their provider and caretaker

So, they see the Caregiver as their lifeline. It’s similar to the relationship and dependence that a small child would feel for a parent. I don’t pretend to know what they’re thinking, but they “shadow” every movement of the caregiver as a small child does a parent.

As this behavior worsened for Mom and Me, we were eventually forced to put locks on our bedroom door. I never thought my Mom would harm me, but it was very frightening to open my eyes from a deep sleep in the middle of the night to have Mom’s eyes peering down at me only inches from my nose. It isn’t a warm feeling of love but more a cold stare given to a stranger.  She would stand over my bed and watch me, silently. I could only wish I knew what she was thinking. Much like “sundowners,” though,  these incidents generally occurred at night and were never mentioned nor remembered by Mom the next morning.

As the description states: Shadowing is the Alzheimer’s or Dementia sufferer’s attempt to keep the caregiver in sight at all times. No matter where the caregiver travels inside the home, the patient is fast on their heels, waiting outside the bathroom door, peering down at the them as they sleep, creeping softly behind them so  not to disturb.

There are numerous behaviors by those with Alzheimer’s or Dementia that have a negative affect on the caregiver; shadowing, sundowning, the lack of hygiene. All we can do under these circumstances is to persevere and remind ourselves that the person with Alzheimer’s or Dementia has no idea what is happening to them.

Most of their days are spent in a confining fear. I can remember Mom’s eyes even now, years later. She was always afraid and complained of being alone all the time, yet she had many family members visit on a regular schedule. Looking back, the small nuisance of shadowing or pleading with Mom to shower leaves only a tiny dot on my memory compared to all the pleasurable times Mom and I enjoyed in those last few years.

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Alzheimer’s: Dementia: Symptoms, Diagnosis, Prevention, Treatment, CareMore infoA Caregiver’s Guide to Dementia: Using Activities and Other Strategies to Prevent, Reduce and Manage Behavioral SymptomsMore infoUltimate Word Find Puzzle Book-Vol. 191More infoHappy Grandma’s Word Search Books: Volume 37More info

Are you coping with “shadowing” from your loved one with dementia?

How are you coping? Did this article help with understanding Shadowing?

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Filed Under: Common Questions, LATE STAGE, What are the Signs and Symptoms Tagged With: Always watching, following caregiver, Little spooky for Caregiver, Shadowing Caregiver

Comments

  1. Yvonne says

    05/15 at 10:44 am

    How can we have two 039 or she trusts? This way the one partner can get a relief…? Thanks

    Reply
  2. Cindy says

    10/28 at 10:03 pm

    There is comfort in knowing others are having similar experiences.

    I moved into my Mum’s condo 4 months ago and the shadowing is almost constant now. My patience is waning some days as I yell “I’m in the bathroom” and then feel guilty for my tone and for forgetting to tell her that’s where I was going. I find myself waiting for Mum to fall asleep so I can jump at the chance to throw out the garbage and other tasks.

    I am usually woken in the middle of the night by Mum’s wandering, opening curtains, closets, etc. I’ve learned to no longer ask what she is doing as she’ll get upset and reply “I don’t know.” Lately, she has been crawling into bed with me around 4am, which I think I prefer to the idea of her standing there staring at me!

    I used to be able to leave Mum in the car for 5 minutes with her favourite music playing; but, today learned that trick no longer works. I foolishly thought I could pop into Starbucks to pick us up a couple of teas. When I returned a few minutes later, Mum was out of the car, clearly upset, and asking a woman in another car to help her. I ran up to Mum, she was crying and annoyed because no one would believe her (not sure what that meant). I won’t be doing that again. To the driver, I really didn’t need a lecture, believe me, I felt (still feel) bad enough…sigh.

    Good luck everyone. May you all find some rest and not run out of patience.

    Reply
    • Sandysgingham says

      10/31 at 10:17 am

      What a kind an loving daughter you are Cindy.

      Thank you for sharing,
      Sandy

    • PH says

      07/31 at 1:23 pm

      Cindy, you meant well and we never know when the other shoe will drop. Due to the complexity of our individual brains, dementia sufferers are on their own unique trajectory. One day they’re fine to leave in the car for 5 minutes, and that afternoon, they leave the car and freak out because you’re out of sight and they don’t know where you are. It’s a constant challenge, and unlike a child who is learning and growing forward, our Loved Ones are changing on their own course. I pray every day for patience and a softening of my tone with my wonderful husband of 44 years, which is very difficult to control when you’re tired and constantly being followed around. I do get a much needed break when he attends an adult day care program for 4-5 hrs. on 4 days per week. Although he seems happier, he is still very attached, which could be the progression of the disease. Hang in there and please have no guilt. We’re only doing the best we can in a very difficult situation. If taking care of yourself means placing your Loved One, then do it.

  3. Stella Gerrish says

    12/03 at 3:28 pm

    Found article interesting. Find it very disturbing at times being followed everywhere. Pleased to learn that it is not just my service user and that it is an expected symptom.

    Reply
    • Sandysgingham says

      12/04 at 10:01 am

      Hello Stella,
      Yes, it is sort of unnerving. What upset me most was to awake from a sound sleep with Mom staring at me, often nose-to-nose. I would wonder how long she’d been there waiting for me to wake.

      I believe it’s their insecurity. They aren’t sure where they are or even who they are. So it makes sense that they want the one person who is always there for them in-sight at all times.

      Still, we love them and it is difficult, but we adjust.

      Thanks for writing Stella,
      Sandy

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