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Alzheimer’s Moments : Memories from a Caregiver’s Diary : Book Review

03/173 Comments

Alzheimer’s Moments
Alzheimers-Moments

I was excited to read this book, especially since the caregiver was of the male persuasion. Secretly, I’ve harbored the view that women are better caregivers than men. Well, at least until a couple years ago.

When COPD shortened my breath and demanded a hospital stay, Hubby became my caregiver. And, surprisingly, I’ve had few complaints. However, had I known this gentler side of hubby 30 years ago I would have demanded more help with our four children. Better that he kept it a secret back then, I’m thinking.

While reading “Alzheimer’s Moments: Memories from a Caregiver’s Diary” I came to believe that Gavin Dougherty is a caregiver’s caregiver. After their Mom’s diagnosis of Alzheimer’s, Gavin and his brother Dan determined to take care of their widowed mother at home where she’d resided for more than 50 years. Dan lived near Mother Dear in up-state New York, while California was home for Gavin. A wonderful decision made for a woman with no daughters but two sons with her very best interest at heart!

The brothers affectionately referred to their mother as “Mother Dear” and as I read their story I came to think of her the same way and will refer to her by that name as well.

With the decision made, Dan looked after Mother Dear during the early stages of Alzheimer’s while she could still live alone and take care of herself. Once the brothers took the car away, there were few mishaps worse than a little forgetfulness. Mother Dear was happy and safe in her own home for several years. 

Overtime, Mother Dear forgot more than words. She forgot appointments, confusing dates and times and places and things. She forgot words, what they meant and how to use them. She forgot buttons, on the remote control for television or VCR. 

When she could no longer dial the phone, or call for help in case of an emergency or accident, the brothers knew it was time for a Primary Caregiver–Fulltime. The flexibility of Gavin’s job allowed for the long move from California to New York and he settled into the family home as Mother Dear’s Primary Caregiver.

Frustration reigns during the next stage (the middle stage) of Alzheimer’s, for Mother Dear and Caregiver Gavin. Mother Dear can remember that she once taped her favorite soap operas, but no longer knows how to work the VCR. She can remember that she use to make phone calls, but can no longer remember how to dial the phone. Similar experiences occur with the stove and toaster and most mechanical devices. For the person with Alzheimer’s, it’s more than frustrating because they remember the things they use to do but can no longer do them.

I must admit, Gavin fared better than I did during this very frustrating stage of Alzheimer’s. My mom and I would argue and argue, until I finally learned to agree at all cost because it didn’t really matter in the long run. Mom would forget anything I said within 2 minutes. This frustration only diminishes when they finally ‘forget that they are forgetting.’ 

With a laid-back, loving personality, Gavin stays calm during most crisis. Of course he minimizes his caregiver skills as,  “Male caregivers are different, they can allow mess and confusion and worry about it later.” Definitely the way to deal with Alzheimer’s behaviors. 

Gavin had a good understanding of the disease and himself.  “Knowing my own personality, I’ve trained myself to see the bright side of any situation. This helps to cope as a caregiver. Instead of something being overwhelming, embarrassing, and sad it could just as easily be viewed as interesting, endearing, and humorous. I was lucky that Mother Dear was never abusive or nasty,” he says.

I also agree with Gavin’s assertion about arguments with Mother Dear. “Pick your Battles,” he says, “should be the motto of every caregiver.” 

If you have a loved-one, relative or friend with Alzheimer’s, this book will take you through every Stage of Alzheimer’s and every Level of Dementia. The last section of the book is Gavin’s quest to find a good home for his mother when home-care is no longer sufficient. You’ll learn why and when constant-care may become necessary; the questions to ask, the choices to make. You can create a checklist of must-do’s while watching Gavin search for Assisted living, Memory Care, and finally a Nursing Home.

Gavin finds an excellent Assisted Living Home for Mother Dear and watches her flourish amid good friends and wonderful staff. The antics of some residents will make you laugh out loud as memory-loss evaporates long taught manners.

You’ll have moments of happy laughter and tears of immense sorrow as you follow Gavin and Mother Dear through the long descent into Alzheimer’s. It was a pleasure to read and share their journey and— to refine my position on men as caregivers. They can be Wonderful Caregivers! 

Gavin-DoughertyGavin Dougherty has a Bachelor of Science degree in Computer Science from Siena and is a marketing consultant. With 25 years of experience writing and designing marketing communications materials, he began keeping a journal to document the daily ups and downs of caring for his mother who was affected by dementia. That diary, in large part, became Alzheimer’s Moments. You can follow at:

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Alzheimer’s Moments: Memories From A Caregiver’s Diary

You can follow Gavin’s story and view photos at his Facebook page:
http://www.facebook.com/alzheimersmoments

Gavin’s Blog reports the latest update for his mother and more:
http://www.alzheimersmoments.com/

 

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Filed Under: Books Reviewed, Recommended Reading Tagged With: assisted living, caregiver, home care, memory care, Nursing Home, son

Dementia, Alzheimer’s and other books with health in mind

01/072 Comments

books

Dementia, Alzheimer’s and other Books

Recently, I was searching Amazon for the new book by Gary Joseph LeBlanc “Managing Alzheimer’s and Dementia Behaviors: Common Sense Caregiving,” and was surprised to see how many new Alzheimer’s books have been released recently. I try to stay up to date with reading and reviewing new ones, but  I think I’ve been slacking recently.

While I was caring for my Mom, I think I read a book a day sometimes, every new nugget of info about Alzheimer’s was like gold. It’s like an unfed hunger when you’re trying to make sense of this disease and help someone you love so much. So here are a few new books for our list of “good reads” about Alzheimer’s.

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 Managing Alzheimer’s and Dementia Behaviors: Common Sense Caregiving

alz

Of course, I already know Gary LeBlanc’s new booklet will be helpful for the caregiver as well as the person with Alzheimer’s.

Gary Joseph LeBlanc is a columnist, speaker and book dealer from Spring Hill, Florida. He was the primary caregiver of his beloved father stricken with Alzheimer’s disease for nearly the past decade.

I’m sure the information in this new booklet will be a catalyst in creating a better understanding between professional caregivers and the family members of the patients who they are caring for.

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The Alzheimer’s Diet: A Step-by-Step Nutritional Approach for Memory Loss Prevention and Treatment (Volume 1)

 

alz-diet

I think I may have been a little skeptical of this diet book while caring for my Mom. I did take care that she got a balanced diet but now that I’m coping with COPD, I have anew insight into guarding even my balanced diet. If I eat the wrong food, I can be immediately short of breath. No fun predicament and a real eye-opener for me about diet, food and our general well-being.

Dr. Richard Isaacson and renowned nutrition expert, Dr. Christopher Ochner team up to create this ground-breaking nutritional guide for individuals concerned about memory loss. In recent years, there has been an explosion in research on nutritional interventions for Alzheimer’s prevention and treatment, which is considered to be the most severe public health crisis of our day.

Based on empirical evidence, The Alzheimer’s Diet outlines what to eat, what not to eat, and highlights a step-by-step approach for improving memory and protecting the brain through diet.

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Creating Moments of Joy: A Journal for Caregivers, Fourth Edition

alz-memories

Jolene Brackey has a vision. A vision that will soon look beyond the challenges of Alzheimer’s disease and focus more of our energy on creating moments of joy.

When a person has short-term memory loss, his life is made up of moments. But if you think about it, our memory is made up of moments, too. We are not able to create a perfectly wonderful day with someone who has dementia, but it is absolutely attainable to create a perfectly wonderful moment; a moment that puts a smile on their face, a twinkle in their eye, or triggers a memory. Five minutes later, they won’t remember what you did or said, but the feeling you left them with will linger.

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Use Your Brain to Change Your Age: Secrets to Look, Feel, and Think Younger Every Day

 

alz-brain

I must admit, I haven’t read this book yet but that title is intriguing, don’t you think. I thought it might be an informing read for those of us who can change our behavior and make a difference in our future.

From the bestselling author and PBS star, a brain healthy program to turn back the clock, and keep your mind sharp and your body fit.

For more than 20 years, Dr. Daniel Amen has been helping people look and feel young, healthy, and vibrant with his brain healthy strategies. Now, he shares his complete anti-aging program, to improve memory, focus, and energy; keep your heart and immune system strong; and reduce the outward signs of aging.

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Why Did Grandma Put Her Underwear In The Refrigerator?

Max Wallack’s New Book  is an outstanding read for the youngster who is coping with the confusion of living with a loved one who has dementia.

Grandma-has-dementia

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Filed Under: Books Reviewed, Recommended Reading Tagged With: Alzheimer's, books, caregiver, dementia, diet, grandma, memory, reading

Staying Afloat in a Sea of Forgetfulness

03/071 Comment

“Staying Afloat in a Sea of Forgetfulness – common sense caregiving”

Review by: Sandy

Generally, when I’m reviewing a book for this site it’s either an Instruction Manual for dealing with the Alzheimer’s patient from Diagnosis to Stage 6.

Or, a Question and Answer dialog where you need only search the ‘contents page’ to find the answer for your loved one’s weird behavior for the day.

As a caregiver for my own Mom with Alzheimer’s for several years, I’ve referred to books from both categories.

A chapter or two to learn how to take her car away. A quick scan through the contents page to find how to handle a crying spell at bed-time, or why she’s suddenly become stubborn as a mule.

As I read “Staying Afloat in a Sea of Forgetfulness” I realized it was different, not only because Gary has “been there, done that” but he had a plan that worked. Gary Leblanc offers sound guidance and solid support for other caregivers, like himself, who have parented a parent with Alzheimer’s.

I found myself nodding and agreeing and enjoying the “telling,” as much as the information imparted. Gary has a knack for “telling it like it is!” He recognizes the complexity and difficulty of being a caregiver as well as the humility and love required to follow through over the long haul, and he’s not shamed by it.

When caring for someone who is suffering from Alzheimer’s or dementia, be prepared to face hardships unlike anything you have encountered before. Unfortunately, not everyone who attempts caregiving will be successful.

Yet, there’s no shame in admitting defeat or the need for help. This ordeal is unequal to any other and if you find that you’re suddenly unable to carry out this crusade, please don’t go through the rest of your life inflamed with guilt. This is definitely not what your loved one would have wished upon you.

Gary breaks down the characteristics needed to be a caregiver into five categories, and projects that you’ll survive if you embrace these qualities. I tend to agree. I don’t think I realized them as necessary when I began caring for my Mom, but know now that they sustained me through her long battle of Alzheimer’s and my own battle with care-giving and it’s after affects.

Don’t worry. These aren’t qualities made for saints only but rather through Gary’s guidance and advice you’ll learn they are qualities that you have within yourself whether you know it or not.

Besides the characteristics that make life easier Gary also has a plan, a routine for caregiving. His plan was formed from necessity and refined through practice. In few words Gary announces his plan with–“Keep it Simple.”

At the very top of the list is routine–a steady, run-of-the-mill lifestyle. In fact, routine is probably whole-some for everybody. It might be boring at times, but if you lack short-term memory, it will be your greatest friend. A habitual life will ease most anxiety and frustration. For instance, I tried to serve Dad’s breakfast and dinner at the same time every day; I even used a particular place for his pills every morning and evening. When I did not, we had a problem. “These aren’t the pills I took yesterday.” Every day I arranged his silverware in a consistent pattern. Pasta or other food that didn’t require a knife still had one placed next to it.

The same rules applied to clothing. There was no reason for too many choices. Three or four outfits kept thing uncomplicated.

A casual trip to the doctor left Dad confused for days. (Left him with a million questions, out of sync the next day, waking hours even affected.) It might sound minor but any breaks in the routine could bring mayhem and snowball.

I learned this was true for my Mom as well. A simple routine was the best routine and produced the calmest home and easiest life for Mom and me.

Gary has written a compelling book about Alzheimer’s and Caregiving, exploring every facet of the caregivers struggle to love despite the horrible stresses that come with the job and then forgive themselves for the unwarranted guilt they feel when their labor is finished and they feel totally inadequate.

Gary relates to the reader, as only another Caregiver can, all that occurs through the process of caring for a loved one with Alzheimer’s from the diagnosis through all the stages of often bizarre behavior and finally the very devastating loss of their passing.

When Gary’s father was first diagnosed with Alzheimer’s, he read and researched everything he could get his hands on about the disease. Right off the bat he could tell whether it had been written by a physician, pharmaceutical company or even a nursing home.

Gary knew when Caregivers are looking for help, the last thing they need is a medical text so difficult to read that they’ve forgotten what they read by the time they put the book down.

Gary’s goal was to write a book that was as “caregiver friendly” as possible. Sharing his triumphs and hardships from a three-thousand + day campaign in dealing with the disease of Alzheimer’s and the world of memory-impairment.

I think Gary has met this goal!

Author: Gary Joseph LeBlanc is a columnist, author, advocate speaker and book dealer from Spring Hill, Florida. Gary can be found at: http://www.commonsensecaregiving.com/. On Facebook at Gary Joseph LeBlanc and Twitter @GaryJoeLeBlanc

Staying Afloat in a Sea of ForgetfulnessMore infoManaging Alzheimer’s and Dementia Behaviors: Common Sense CaregivingMore info

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Filed Under: Activities, Books Reviewed, Care Tips, Caring for the Caregiver, communication, Faces of Alzheimer's, Guest Post Tagged With: Alzheimer's, caregiver, caregiving, father, gary leblanc

This Study shows Caregivers live longer than Non-Caregivers? There must be a mistake

10/131 Comment

Caregivers Live Longer?

During several years of studying the differences between caregivers and non-caregivers in four locations, Dr. Lisa Fredman, a Boston University epidemiologist, and her colleagues found that while caregivers were indeed more stressed, they still had lower mortality rates than non-caregivers over eight years of follow-up.

I was totally surprised when I read this article. It’s common knowledge among those caring for aging seniors or the disabled family member that the reverse seems to be true.  That’s what most of us think because  care-giving is so stressful!

In fact, caring for an elderly relative is so stressful, relentless and draining that it takes a toll on your own well-being.

Isn’t that what we’ve all been told? Even some studies have shown that it can increase your risk of depression and heart disease, impair your immune system and even contribute to death.

I cared for my own Mother with Alzheimer’s  while she could still live alone, later when she came to live with me and eventually when she moved into a “group home” because I could no longer meet her needs. I wouldn’t have had it any other way. But It was difficult, stressful and I found myself generally exhausted most of the time.

I’ve written many articles about caregiver stress and am constantly looking for new ways to combat it or enlist other family members to help the usually “lone” caregiver.

Even Dr. Friedman recalled her own surprise as she viewed the results of this new study. “I thought, what on earth is going on here?” as she first realized the results of the study. Then, “I blamed myself,” she said. “I thought something was wrong with my data.”

Yet, In another study of about 900 women drawn from the same four-site sample as Dr. Friedman’s Study, those classified as high-intensity caregivers — because they performed more functions for their dependent relatives — maintained stronger physical performance than non-caregivers.

On tests like walking pace, grip strength and the speed with which they could rise from a chair, the high-intensity group declined less than lower-intensity caregivers or non-caregivers over two years.

“That was a shocker,” Dr. Fredman said, before she went back to look at the cognitive functioning for these same women. Here too, caregivers did significantly better on memory tests than did non-caregivers when followed for two years. Though the groups were about the same average age, in their early to mid-80s, caregivers scored at the level of people who were 10 years younger.

I think we all know caregivers receive rich rewards from caring for others, such as spiritual strength, personal-satisfaction, growing confidence, perserverance, increased closeness to family or the loved one who suffers through Alzheimer’s or some other disabling disease.

Yet, these studies are showing entirely different rewards; these caregivers are physically stronger, they can walk faster, grip harder, rise from their chair quicker and recall more words on their memory tests than a person of the same age who has never been a caregiver.

It is true, the person who becomes a caregiver is usually in good health and physically active already. And, part of the job requires a good mind with an optimistic attitude. The caregiver is generally forced to decipher complex thought as they juggle schedules, monitor medications and handle financial responsibilities If they weren’t able to do these things in the first place, they would be passed over as inappropriate as caregiver.

Plus, Dr. Friedman points out that most caregiving activities require you to move around a lot. “It keeps people on their feet, up and going,” she said. And exercise is known to improve physical health and cognition.

So it may be true that the question of how or why caregiving impacts the caregiver is more complicated and individual than we think. Perhaps new studies will disprove the old believe that being a caregiver means an early demise.

Instead, I hope we continue to learn new, positive benefits for the hard working Caregiver.

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The Caregiver: Families of Honor, Book OneMore infoSecure® Wireless Remote Two Call Button Caregiver PagerMore infoHope for the Caregiver: Encouraging Words to Strengthen Your SpiritMore infoCreating Moments of Joy for the Person with Alzheimer’s or Dementia: A Journal for Caregivers, Fourth EditionMore infoThe Educated Caregiver, Three DVD SetMore info

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Filed Under: Common Questions, The Caregiver Tagged With: benefits, care-giver, caregiver, caregiving, rewards, stronger person

Caring for Someone with Alzheimer’s Can Shorten Your Life

04/091 Comment

 Caring for someone with Alzheimer’s – may shorten your life?

grandma-sadEveryone knows it’s difficult to care for someone when they’re ill whether they be young or old. But caring for someone with Alzheimer’s disease presents special challenges that you don’t see with other forms of caring.

Caring for someone with Alzheimer’s can mean watching a dearly loved family member slowly slip away and forget your very existence. It can be extremely stressful and difficult to cope with and live with anyone with Alzheimer’s disease.

Besides watching the loved one’s memory fade away, a caregiver for an Alzheimer’s patient must also cope with the patient’s wandering, and hallucinations, and someone who becomes suspicious and confused about their very own relatives. Plus, adequate care can mean: 24-hour, around-the-clock care, which usually falls to the closest family members.

So it isn’t unusual for most family caregivers who try to provide this level of 24/7 care, to eventually feel overwhelmed and exhausted.

Studies have shown that caregivers to Alzheimer’s or Dementia patients have a higher rate of getting the disease themselves over the general population.

Constant stress is hard on the body and mind. But there are things you can do to help yourself if you are caring for a loved one with Alzheimer’s.

Dr. Kathy Johnson, PhD, CMC, Certified Geriatric Care Manager and Founder and Chief Executive Officer of Home Care Assistance offers the following suggestions to those caring for a loved one with Alzheimer’s:

  • 1. Contact the Alzheimer’s Association or the Senior Center in your city. They can help you find support groups or organizations for you to join to get information and connect with others just like you.
  • 2. Arrange for respite care; call relatives, neighbors or friends and ask them to help. Patch together a weekly schedule of people who will fill your shoes so you can run errands, get groceries or just enjoy time off from caregiving. Home Care agencies, like Home Care Assistance (www.homecareassistance.com), are experts in providing respite care ranging from a few hours day to 24/7 care.
  • 3. Research Adult Day Care Centers; these are typically 9-4 daily programs where you drop off your loved one for the day. They offer a routine, safe environment.
  • 4. Hire a Geriatric Care Manager; visit www.caremanger.org for a list of care managers in your area. These professional can help you locate and coordinate all the services your loved one needs, relieving you in the process.

 

Author: Kathy N. Johnson, PhD, CMC, is a Certified Geriatric Care Manager, Founder and Chief Executive Officer of Home Care Assistance. She holds a Doctorate in Psychology from the Illinois Institute of Technology. Kathy also co-authored the book, Happy to 102: The Best Kept Secrets to a Long and Happy Life, based on the ground breaking Okinawa Centenarian Study, which spells out precisely what it takes to delay or escape Alzheimer’s and other chronic diseases, as well as how to slow the aging process. www.homecareassistance.com

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Caring for the CaregiverMore infoGift Basket For a Caregiver You KnowMore infoThe Caregiver’s Survival HandbookMore infoFor A Special Nurse You KnowMore infoChicken Soup for the Caregiver’s SoulMore info

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Filed Under: The Caregiver Tagged With: caregiver, caregiving can shorten life, stress

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